Ignite Creation Date:
2025-12-25 @ 2:27 AM
Ignite Modification Date:
2026-05-21 @ 1:47 PM
Study NCT ID:
NCT04855734
Status:
COMPLETED
Last Update Posted:
2025-05-04
First Post:
2021-02-22
Is NOT Gene Therapy:
True
Has Adverse Events:
True
Brief Title:
FACE for Children With Rare Diseases
Sponsor:
Children's National Research Institute
Organization:
Conditions & Keywords Data
Conditions:
Conditions
| Condition Brief | Condition Text | View |
|---|---|---|
| None | Rare Diseases | View |
Keywords:
Keywords
| Keyword Brief | Keyword Text | View |
|---|---|---|
| None | palliative care | View |
| None | psychosocial interventions | View |
| None | rare diseases | View |
| None | family interventions | View |
| None | family-centered care | View |
| None | patient-centered care | View |
| None | pediatrics | View |
| None | adolescent | View |
| None | end-of-life care | View |
| None | public health | View |
| None | mental health | View |
| None | spirituality | View |
| None | children with rare diseases | View |
| None | behavioral interventions | View |
| None | decisional burden | View |
| None | role stress | View |
| None | family caregiver | View |
| None | person-centered care | View |
| None | chronic conditions | View |
| None | complex health needs | View |
| None | caregiver burden | View |
| None | respecting choices | View |
| None | evidence-based practice | View |
| None | randomized clinical trial (RCT) | View |
| None | anxiety | View |