Ignite Creation Date:
2025-12-24 @ 12:47 PM
Ignite Modification Date:
2025-12-27 @ 4:32 AM
Study NCT ID:
NCT01465061
Status:
COMPLETED
Last Update Posted:
2011-11-04
First Post:
2011-10-26
Is NOT Gene Therapy:
True
Has Adverse Events:
False
Brief Title:
A Survey on the Role and Benefits of Online Social Networks on Filipino Patients With Psoriasis
Sponsor:
Organization:
Raw JSON
{'hasResults': False, 'derivedSection': {'miscInfoModule': {'versionHolder': '2025-12-24'}, 'conditionBrowseModule': {'meshes': [{'id': 'D011565', 'term': 'Psoriasis'}], 'ancestors': [{'id': 'D017444', 'term': 'Skin Diseases, Papulosquamous'}, {'id': 'D012871', 'term': 'Skin Diseases'}, {'id': 'D017437', 'term': 'Skin and Connective Tissue Diseases'}]}}, 'protocolSection': {'designModule': {'studyType': 'OBSERVATIONAL', 'designInfo': {'timePerspective': 'CROSS_SECTIONAL', 'observationalModel': 'ECOLOGIC_OR_COMMUNITY'}, 'enrollmentInfo': {'type': 'ACTUAL', 'count': 124}}, 'statusModule': {'overallStatus': 'COMPLETED', 'startDateStruct': {'date': '2011-02'}, 'expandedAccessInfo': {'hasExpandedAccess': False}, 'statusVerifiedDate': '2011-11', 'completionDateStruct': {'date': '2011-08', 'type': 'ACTUAL'}, 'lastUpdateSubmitDate': '2011-11-01', 'studyFirstSubmitDate': '2011-10-26', 'studyFirstSubmitQcDate': '2011-11-01', 'lastUpdatePostDateStruct': {'date': '2011-11-04', 'type': 'ESTIMATED'}, 'studyFirstPostDateStruct': {'date': '2011-11-04', 'type': 'ESTIMATED'}, 'primaryCompletionDateStruct': {'date': '2011-06', 'type': 'ACTUAL'}}, 'outcomesModule': {'primaryOutcomes': [{'measure': 'Demographic profile of online support users', 'timeFrame': '3 months', 'description': 'The sociodemographic profile of the respondents such as age (mean, range), sex, civil status, level of formal education, employment status were described.'}, {'measure': 'Disease characteristics of online support users', 'timeFrame': '3 months', 'description': 'The overall health status (poor, average, good), psoriasis severity (mild, moderate, severe), duration of illness of online support groups were evaluated.'}], 'secondaryOutcomes': [{'measure': 'Activities performed and extent of participation of online support users', 'timeFrame': '3 months', 'description': 'Participants were also asked regarding their attitudes and experiences with online communities, length of use, log-on frequency and nature of online activities.'}, {'measure': 'Empowering processes and outcomes experienced by online support group members', 'timeFrame': '3 months', 'description': 'The frequency with which empowering processes (exchange information, find recognition, share experiences, encounter emotional support, help others) occurred were measured on a 3-point scale (1-seldom to never, 2-sometimes, 3-often). The outcomes experienced (are better informed, feel more confident in relationship with physician, have improved acceptance, feel more confident with treatment, have enhanced social well-being, have increased optimism and control over the future, have enhanced self-esteem) were assessed on a 3-point scale (1-disagree, 2-neither agree nor disagree, 3-agree).'}, {'measure': 'Correlation of variables', 'timeFrame': '3 months', 'description': 'Intervariable correlation (overall health status/psoriasis severity with frequency/duration of usage, educational level/employment status with frequency of usage) were also be assessed for significance.'}]}, 'oversightModule': {'oversightHasDmc': False}, 'conditionsModule': {'keywords': ['Online social network', 'Psoriasis', 'Filipino'], 'conditions': ['Psoriasis']}, 'descriptionModule': {'briefSummary': 'With the rise of usage of the internet, online social networks have recently been gaining popularity. Joining these groups can be beneficial to patients with chronic medical illness, such as psoriasis.This was a cross-sectional online survey of psoriasis patients in the Philippines who are members of online support groups. The survey was conducted for a period of three months.The purpose of the research project was to describe the demographics, disease characteristics, activities and benefits of online support groups to Filipino patients with psoriasis. The extent to which members experience empowering processes and outcomes was also evaluated.'}, 'eligibilityModule': {'sex': 'ALL', 'stdAges': ['CHILD', 'ADULT', 'OLDER_ADULT'], 'samplingMethod': 'NON_PROBABILITY_SAMPLE', 'studyPopulation': 'Members of virtual psoriasis local support networks (Yahoo-based Psoriasis Philippine Online Community, Inc. and Facebook Psoriasis Online Support Group) will be the main subjects of the study.', 'healthyVolunteers': True, 'eligibilityCriteria': 'Inclusion Criteria:\n\n* diagnosis of psoriasis\n* individuals who are willing to complete the online survey\n* proficiency in English\n* membership in an online psoriasis support network\n\nExclusion Criteria:\n\n* nonmembers\n* unwilling to participate in the study'}, 'identificationModule': {'nctId': 'NCT01465061', 'briefTitle': 'A Survey on the Role and Benefits of Online Social Networks on Filipino Patients With Psoriasis', 'organization': {'class': 'OTHER', 'fullName': 'University of the Philippines'}, 'officialTitle': 'A Survey on the Role and Benefits of Online Social Networks on Filipino Patients With Psoriasis', 'orgStudyIdInfo': {'id': 'MED01032011'}}, 'armsInterventionsModule': {'armGroups': [{'label': 'Online support user', 'interventionNames': ['Behavioral: Online support group']}], 'interventions': [{'name': 'Online support group', 'type': 'BEHAVIORAL', 'otherNames': ['Online social network, virtual online community'], 'description': 'Joining online support group', 'armGroupLabels': ['Online support user']}]}, 'contactsLocationsModule': {'overallOfficials': [{'name': 'Charlene U Ang-Tiu, MD', 'role': 'PRINCIPAL_INVESTIGATOR', 'affiliation': 'University of the Philippines-Philippine General Hospital Section of Dermatology'}]}, 'sponsorCollaboratorsModule': {'leadSponsor': {'name': 'University of the Philippines', 'class': 'OTHER'}, 'collaborators': [{'name': 'Philippine Dermatological Society', 'class': 'NETWORK'}], 'responsibleParty': {'type': 'PRINCIPAL_INVESTIGATOR', 'investigatorTitle': 'Dermatology resident', 'investigatorFullName': 'Charlene U. Ang-Tiu', 'investigatorAffiliation': 'University of the Philippines'}}}}