Ignite Creation Date:
2024-05-06 @ 11:21 AM
Last Modification Date:
2024-10-26 @ 12:43 PM
Study NCT ID:
NCT03492060
Status:
RECRUITING
Last Update Posted:
2022-11-14
First Post:
2018-04-02
Brief Title:
A Natural History Study of hnRNP-related Disorders
Sponsor:
Organization:
Columbia University
Study Design
Study Type:
OBSERVATIONAL
Expanded Access Type Individual:
None
Expanded Access Type Intermediate:
None
Expanded Access Type Treatment:
None
Patient Registry:
True
Target Duration:
5 Years
Design Allocation:
Design Intervention Model:
Design Intervention Model Description:
Design Masking Description:
Bio Spec Retention:
SAMPLES_WITH_DNA
Bio Spec Description:
Blood and tissue samples will be obtained through one of three ways
1 The sample can be taken as part of routine clinical care for example by a referring physician and sent to our site for storage
2 An existing sample you may have provided for research in another study can be transferred to our site for storage
3 The sample can be taken by the Principal Investigator of this study for research and will be stored at our site
Enrollment Count:
1000
Enrollment Type:
ESTIMATED
Design Primary Purpose:
Design Masking:
Phases:
Observational Models:
| Name |
|---|
| Cohort |
Time Perspective List:
Clinical Trial Statuses
| Name |
|---|
| 47787 |
Who Masked List: