Ignite Creation Date:
2025-12-25 @ 4:12 AM
Ignite Modification Date:
2026-01-12 @ 8:57 AM
Study NCT ID:
NCT03088020
Status:
RECRUITING
Last Update Posted:
2024-08-09
First Post:
2017-03-17
Is Gene Therapy:
True
Has Adverse Events:
False
Brief Title:
International Congenital Central Hypoventilation Syndrome (CCHS) Registry and CCHS SHARE
Sponsor:
Organization:
Study Design
Study Type:
OBSERVATIONAL
Expanded Access Type Individual:
None
Expanded Access Type Intermediate:
None
Expanded Access Type Treatment:
None
Patient Registry:
True
Target Duration:
20 Years
Design Allocation:
Design Intervention Model:
Design Intervention Model Description:
Design Masking Description:
Bio Spec Retention:
None
Bio Spec Description:
None
Enrollment Count:
Enrollment Type:
Design Primary Purpose:
Design Masking:
Phases:
Observational Models:
Time Perspective List:
Who Masked List: