Ignite Creation Date:
2024-10-26 @ 3:41 PM
Last Modification Date:
2024-10-26 @ 3:41 PM
Study NCT ID:
NCT06617741
Status:
RECRUITING
Last Update Posted:
None
First Post:
2024-09-26
Brief Title:
Myasthenia Gravis Foundation of America Global MG Patient Registry
Sponsor:
None
Organization:
None
Study Overview
Official Title:
Myasthenia Gravis Foundation of America Global MG Patient Registry
Status:
RECRUITING
Status Verified Date:
2024-09
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
No
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
MGFAPR
Brief Summary:
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis MG in the United States The main questions it aims to answer are
How and when are people with MG diagnosed
What are the most common symptoms associated with MG
What treatments are being used to treat MG
What are the impacts of MG on activities of daily living employment and quality of life
What are the experiences with exacerbation hospitalization and healthcare access for people with MG Participants will answer a survey to enroll in the study and be invited to fill out an update survey twice a year
How and when are people with MG diagnosed
What are the most common symptoms associated with MG
What treatments are being used to treat MG
What are the impacts of MG on activities of daily living employment and quality of life
What are the experiences with exacerbation hospitalization and healthcare access for people with MG Participants will answer a survey to enroll in the study and be invited to fill out an update survey twice a year
Detailed Description:
This is a longitudinal observational patient reported registry
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
None
Is a FDA Regulated Device?:
None
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None