Ignite Creation Date:
2024-06-16 @ 11:52 AM
Last Modification Date:
2024-10-26 @ 3:31 PM
Study NCT ID:
NCT06450600
Status:
NOT_YET_RECRUITING
Last Update Posted:
2024-06-10
First Post:
2024-04-03
Brief Title:
Enhancing Quality of Life in MS Patients Through Tailored Therapeutic Education
Sponsor:
Akhrif Iman
Organization:
Ibn Sina Hospital
Study Overview
Official Title:
Enhancing Quality of Life in Multiple Sclerosis a Study Protocol to Evaluate the Impact of a Therapeutic Education Program
Status:
NOT_YET_RECRUITING
Status Verified Date:
2024-04
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
MS
Brief Summary:
Within the framework of improving the quality of life for patients with Multiple Sclerosis MS this prospective and descriptive study aims to evaluate the effectiveness of a therapeutic education program The program designed specifically for MS patients includes individual sessions to identify needs fears and questions followed by targeted educational workshops These workshops address understanding the disease managing bladder and sphincter issues fatigue management and psychological well-being relying on a multidisciplinary team including physiotherapists neurologists psychologists urologists occupational therapists nurses and nutritionists The primary goal is to assess the impact of this program on the quality of life of patients measured by the MSQOL-54 questionnaire with secondary measures such as the Urinary Handicap Scale MHU Fifty patients will be recruited from the Department of Physical Medicine and Rehabilitation at Rabat University Hospital Morocco with follow-ups planned at 3 and 6 months This program aims to provide patients with the knowledge and skills necessary for better management of their condition thereby promoting active participation in treatment and a significant improvement in their quality of life
Detailed Description:
This is a prospective descriptive and analytical study without a control group aiming to measure the impact of a specialized therapeutic education program on the quality of life in individuals diagnosed with multiple sclerosis
The educational program includes individual sessions to assess patient needs followed by workshops facilitated by a multidisciplinary team These workshops are designed to provide comprehensive support and education on various aspects of living with multiple sclerosis
Understanding the Disease This workshop will provide participants with a detailed understanding of multiple sclerosis including its etiology pathophysiology and common symptoms Participants will learn about the importance of early diagnosis disease progression and treatment options available
Managing Bladder and Sphincter Issues Bladder and sphincter dysfunction are common symptoms of multiple sclerosis that significantly impact quality of life This workshop will focus on strategies for managing urinary symptoms including bladder retraining pelvic floor exercises and the use of assistive devices Participants will also receive guidance on managing bowel dysfunction and preventing complications such as urinary tract infections
Fatigue Management Fatigue is a pervasive and debilitating symptom of multiple sclerosis This workshop will explore the causes of fatigue in MS and provide practical strategies for conserving energy and managing daily activities Participants will learn about pacing techniques energy-saving devices and the importance of restorative sleep
Psychological Well-being Living with multiple sclerosis can have a significant impact on mental health and emotional well-being This workshop will address coping strategies for managing stress anxiety and depression associated with the disease Participants will learn relaxation techniques mindfulness exercises and how to access support services and community resources
The educational program includes individual sessions to assess patient needs followed by workshops facilitated by a multidisciplinary team These workshops are designed to provide comprehensive support and education on various aspects of living with multiple sclerosis
Understanding the Disease This workshop will provide participants with a detailed understanding of multiple sclerosis including its etiology pathophysiology and common symptoms Participants will learn about the importance of early diagnosis disease progression and treatment options available
Managing Bladder and Sphincter Issues Bladder and sphincter dysfunction are common symptoms of multiple sclerosis that significantly impact quality of life This workshop will focus on strategies for managing urinary symptoms including bladder retraining pelvic floor exercises and the use of assistive devices Participants will also receive guidance on managing bowel dysfunction and preventing complications such as urinary tract infections
Fatigue Management Fatigue is a pervasive and debilitating symptom of multiple sclerosis This workshop will explore the causes of fatigue in MS and provide practical strategies for conserving energy and managing daily activities Participants will learn about pacing techniques energy-saving devices and the importance of restorative sleep
Psychological Well-being Living with multiple sclerosis can have a significant impact on mental health and emotional well-being This workshop will address coping strategies for managing stress anxiety and depression associated with the disease Participants will learn relaxation techniques mindfulness exercises and how to access support services and community resources
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None