Ignite Creation Date:
2024-06-16 @ 11:49 AM
Last Modification Date:
2024-10-26 @ 3:30 PM
Study NCT ID:
NCT06434285
Status:
NOT_YET_RECRUITING
Last Update Posted:
2024-05-30
First Post:
2024-05-23
Brief Title:
A 4Pi Questionnaire for Service User and Carer Involvement Experience
Sponsor:
Kings College London
Organization:
Kings College London
Study Overview
Official Title:
Development of a 4Pi Framework-based Questionnaire to Evaluate Service User and Carer Involvement Experience in SLaM
Status:
NOT_YET_RECRUITING
Status Verified Date:
2024-05
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
4PiQ
Brief Summary:
Service user SU and carer involvement in planning healthcare services and improving their quality is crucial and required by the NHS Research has shown that SUs and carers can greatly benefit healthcare however effective involvement can be challenging due to barriers such as language lack of training or support and undervaluing the input of patients and the public compared to that of professionals
The 4Pi framework sets out standards for good involvement practices by focusing on principles such as respect and inclusivity shared purposes diversity accurate planning and ensuring involvement leads to improvements in peoples lives
This study funded by Kings Health Partners aims to take the 4Pi framework a step further by developing a questionnaire to evaluate how well patients and carers are involved in improving mental health services The researchers will work closely with SUs and carers to create this questionnaire with the ultimate goal to ensure that involvement in healthcare leads to real positive changes for everyone involved
The research questions for the study is to what extent from SUs and carers perspectives is the questionnaire understandable and successful in capturing the meaning of 4Pi domains
To be eligible for the study participants need to be at least 18 years old and have experience of involvement activitiesprojects in SLaM Researchers SUs and carers will define the questionnaire to ensure it is understandable comprehensive and feasible this will be done via virtual or in person at Denmark HillKings College London campus depending on participants preferences group interviews The questionnaire will then be piloted on a small sample of individuals and the final questionnaire refined based on any potential additional feedback from them
This study is part of the Kings Improvement Science programmes research portfolio that is funded by Kings Health Partners
The 4Pi framework sets out standards for good involvement practices by focusing on principles such as respect and inclusivity shared purposes diversity accurate planning and ensuring involvement leads to improvements in peoples lives
This study funded by Kings Health Partners aims to take the 4Pi framework a step further by developing a questionnaire to evaluate how well patients and carers are involved in improving mental health services The researchers will work closely with SUs and carers to create this questionnaire with the ultimate goal to ensure that involvement in healthcare leads to real positive changes for everyone involved
The research questions for the study is to what extent from SUs and carers perspectives is the questionnaire understandable and successful in capturing the meaning of 4Pi domains
To be eligible for the study participants need to be at least 18 years old and have experience of involvement activitiesprojects in SLaM Researchers SUs and carers will define the questionnaire to ensure it is understandable comprehensive and feasible this will be done via virtual or in person at Denmark HillKings College London campus depending on participants preferences group interviews The questionnaire will then be piloted on a small sample of individuals and the final questionnaire refined based on any potential additional feedback from them
This study is part of the Kings Improvement Science programmes research portfolio that is funded by Kings Health Partners
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None