Ignite Creation Date:
2024-05-19 @ 5:33 PM
Last Modification Date:
2024-10-26 @ 3:29 PM
Study NCT ID:
NCT06412328
Status:
COMPLETED
Last Update Posted:
2024-05-14
First Post:
2024-05-07
Brief Title:
Psychoeducation Program for Parents of Children With DMD
Sponsor:
Lokman Hekim Üniversitesi
Organization:
Lokman Hekim Üniversitesi
Study Overview
Official Title:
The Effect of Psychosocial Support-based Psychoeducation Program on Psychiatric Symptoms Stress Coping Styles and Social Support Perceptions of Families of Children and Adolescents Diagnosed With Duchenne Muscular Dystrophy
Status:
COMPLETED
Status Verified Date:
2024-05
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
Having and caring for a child with disabilities brings emotional social and economic difficulties for many families Families may experience many physiological and psychological problems due to the stress and anxiety they experience In addition it is seen that families with children with disabilities give up their existing roles reduce their participation in social activities and reach stagnation in their social lives Mothers are affected psychologically more than fathers and feel lonely It is stated that mothers believe that they cannot afford everything in the face of the responsibilities they carry and accordingly they experience emotional and psychological problems such as stress anxiety depression absent-mindedness forgetfulness and tantrums
Living with a child with a disability causes family members to experience different emotions as mentioned above families may frequently experience fear anxiety guilt anger and depression It is reported that mothers of children with DMD experience depression anxiety about the future and uncertainty more than mothers of healthy children Families of children with DMD reported that they felt tired and fatigued during the process of caring for the child and had difficulties in participating in social activities and allocating time for themselves Most of these families stated that they needed psychological and social support Therefore it is important to address the psychiatric aspects of families with children with DMD during the disease process Parental health contributes positively to the health and adaptation of the family in general Examining the psychiatric symptoms caused by the problems experienced by families related to DMD and how they cope with this stress will be useful in evaluating and addressing these families In addition the social support that families with children with disabilities receive from their immediate environment and institutions is also an important issue It has been reported that social support from relatives friends neighbors organizations and communities increases the psychological resilience levels of families they feel that they are not alone in the face of problems and their anxiety levels decrease In the literature it is generally mentioned that when the culture of pediatric care is supportive and family-oriented the care of the patient will undergo a change when transitioning from pediatric care to the adult period However studies evaluating the problems experienced by families in the care of patients with DMD psychiatric symptoms ways of coping with stress and perceived social support are insufficient It is important to evaluate the problems experienced by parents in the families of children with DMD in developing skills to cope with the disease process and disease-related problems and then to provide training in these areas Because if parents who are in the role of caregivers are equipped with knowledge and skills in this context they will provide better care and be more useful to their children with DMD
In line with this information the aim of this study was to evaluate the problems experienced by parents of children with DMD psychiatric symptoms coping skills with stress and the level of social support they perceive and to implement a psychosocial support-based psychoeducation program related to these areas
Living with a child with a disability causes family members to experience different emotions as mentioned above families may frequently experience fear anxiety guilt anger and depression It is reported that mothers of children with DMD experience depression anxiety about the future and uncertainty more than mothers of healthy children Families of children with DMD reported that they felt tired and fatigued during the process of caring for the child and had difficulties in participating in social activities and allocating time for themselves Most of these families stated that they needed psychological and social support Therefore it is important to address the psychiatric aspects of families with children with DMD during the disease process Parental health contributes positively to the health and adaptation of the family in general Examining the psychiatric symptoms caused by the problems experienced by families related to DMD and how they cope with this stress will be useful in evaluating and addressing these families In addition the social support that families with children with disabilities receive from their immediate environment and institutions is also an important issue It has been reported that social support from relatives friends neighbors organizations and communities increases the psychological resilience levels of families they feel that they are not alone in the face of problems and their anxiety levels decrease In the literature it is generally mentioned that when the culture of pediatric care is supportive and family-oriented the care of the patient will undergo a change when transitioning from pediatric care to the adult period However studies evaluating the problems experienced by families in the care of patients with DMD psychiatric symptoms ways of coping with stress and perceived social support are insufficient It is important to evaluate the problems experienced by parents in the families of children with DMD in developing skills to cope with the disease process and disease-related problems and then to provide training in these areas Because if parents who are in the role of caregivers are equipped with knowledge and skills in this context they will provide better care and be more useful to their children with DMD
In line with this information the aim of this study was to evaluate the problems experienced by parents of children with DMD psychiatric symptoms coping skills with stress and the level of social support they perceive and to implement a psychosocial support-based psychoeducation program related to these areas
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None