Ignite Creation Date:
2024-05-06 @ 8:20 PM
Last Modification Date:
2024-10-26 @ 3:25 PM
Study NCT ID:
NCT06346106
Status:
RECRUITING
Last Update Posted:
2024-04-03
First Post:
2024-02-07
Brief Title:
The Diagnostic Experience of Male Rett Syndrome
Sponsor:
Childrens Hospital Colorado
Organization:
Childrens Hospital Colorado
Study Overview
Official Title:
The Diagnostic Experience of Male Rett Syndrome
Status:
RECRUITING
Status Verified Date:
2024-03
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
The Diagnostic Experience of Male Rett Syndrome collects information on the lived experiences of parents or caregivers to boys with Rett Syndrome Key information examined includes the process of getting a male Rett syndrome diagnosis your sons systems of care and your priorities for his health needs
Enrolled participants will complete an online survey with questions about having a son with Rett Syndrome The Diagnostic Experience of Male Rett Syndrome study is available to parents or caregivers to boys alive or passed with Rett Syndrome Compensation is not provided
Enrolled participants will complete an online survey with questions about having a son with Rett Syndrome The Diagnostic Experience of Male Rett Syndrome study is available to parents or caregivers to boys alive or passed with Rett Syndrome Compensation is not provided
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None