Ignite Creation Date:
2024-05-06 @ 8:18 PM
Last Modification Date:
2024-10-26 @ 3:24 PM
Study NCT ID:
NCT06330350
Status:
RECRUITING
Last Update Posted:
2024-03-26
First Post:
2024-03-11
Brief Title:
Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling
Sponsor:
Maastricht University Medical Center
Organization:
Maastricht University Medical Center
Study Overview
Official Title:
Investigating Perspectives of Patients With Genodermatosis and Healthcare Professionals on Reproductive Counselling
Status:
RECRUITING
Status Verified Date:
2024-03
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
The goal of this observational study is to understand the perspectives and needs of patients with genodermatoses and their partners who wish to have children regarding their decision-making process and their consideration of reproductive options Additionally the investigators aim to investigate the level of knowledge and perspectives of healthcare professionals such as clinical geneticists dermatologists and other clinicians involved and want to explore to what extent patients and their partners are well informed about these reproductive options To achieve this the investigators will conduct individual semi-structured qualitative interviews with participants affected by genodermatoses and their partners and with healthcare professionals
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None