Ignite Creation Date:
2024-05-06 @ 8:06 PM
Last Modification Date:
2024-10-26 @ 3:20 PM
Study NCT ID:
NCT06251843
Status:
NOT_YET_RECRUITING
Last Update Posted:
2024-02-09
First Post:
2024-02-01
Brief Title:
Support Strategies for Parents During the First Year Following Their Childs Diagnosis of Sickle Cell Disorder
Sponsor:
Kings College London
Organization:
Kings College London
Study Overview
Official Title:
Co-designing Support Strategies for Parents to Encourage Early Engagement With Health Services During the First Year Following Their Childs Diagnosis of Sickle Cell Disorder
Status:
NOT_YET_RECRUITING
Status Verified Date:
2024-02
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
Background Sickle cell disorder SCD the commonest genetic faulty gene inherited from both parents condition in the UK affects mainly underserved groups Babies with SCD must start treatments soon after birth to prevent them becoming unwell Stigma fear and inequalities can make it difficult for parents to accept their childs diagnosis and access appropriate treatment and support
Aim Develop strategies to improve support for parents during their childs first year of life following a SCD diagnosis to encourage early engagement with health services
Method Comprises two stages i Determine why parents choose to engage with support or not ii Use this information to co-design strategies to ensure greater accessibility of support for parents during their childs first year of life
Patient and Public Involvement We are working with Sickle Cell Society and parents of children with SCD Dissemination Findings will be shared with support groups charities health professionals and academics
Aim Develop strategies to improve support for parents during their childs first year of life following a SCD diagnosis to encourage early engagement with health services
Method Comprises two stages i Determine why parents choose to engage with support or not ii Use this information to co-design strategies to ensure greater accessibility of support for parents during their childs first year of life
Patient and Public Involvement We are working with Sickle Cell Society and parents of children with SCD Dissemination Findings will be shared with support groups charities health professionals and academics
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None