Ignite Creation Date:
2024-05-06 @ 7:42 PM
Last Modification Date:
2024-10-26 @ 3:12 PM
Study NCT ID:
NCT06103006
Status:
COMPLETED
Last Update Posted:
2023-10-27
First Post:
2023-10-22
Brief Title:
Remote Physiotherapy to Protect Physical Health in Duchenne Muscular Dystrophy
Sponsor:
Lokman Hekim Üniversitesi
Organization:
Lokman Hekim Üniversitesi
Study Overview
Official Title:
Remote Physiotherapy to Protect Physical Health in Duchenne Muscular Dystrophy Telerehabilitation
Status:
COMPLETED
Status Verified Date:
2023-10
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
Duchenne Muscular Dystrophy DMD is a progressive genetic neuromuscular disease characterized by progressive loss of motor function respiratory failure and cardiomyopathy required regular physiotherapy With the outbreak of the pandemic rehabilitation centers that make up the weekly physiotherapy routine of children with disabilities have slowed down or even stopped their activities So DMD who have additional diseases such as respiratory muscle weakness spinal deformity obesity and cardiac dysfunction have also been negatively affected The telerehabilitation method which is well planned and prepared for the abilities and needs of patients and caregivers is seen as a good option at this point
Studies reporting the feasibility and safety of telerehabilitation in joint replacement multiple sclerosis and post-operative conditions report that the length of stay was reduced there was access to the same level of service regardless of the distance and there was no travel cost Despite these advantages the framework and applicability of telerehabilitation programs have been investigated limited and not focused on effectiveness of telerehabilitation in patients with DMD
According to the current knowledge telerehabilitation in DMD is a subject that needs to be investigated in terms of its benefits So in this study it was aimed to show the telerehabilitations feasibility and its effects on performance level endurance fall frequency pulmonary functions and satisfaction level with the program in individuals with DMD
Studies reporting the feasibility and safety of telerehabilitation in joint replacement multiple sclerosis and post-operative conditions report that the length of stay was reduced there was access to the same level of service regardless of the distance and there was no travel cost Despite these advantages the framework and applicability of telerehabilitation programs have been investigated limited and not focused on effectiveness of telerehabilitation in patients with DMD
According to the current knowledge telerehabilitation in DMD is a subject that needs to be investigated in terms of its benefits So in this study it was aimed to show the telerehabilitations feasibility and its effects on performance level endurance fall frequency pulmonary functions and satisfaction level with the program in individuals with DMD
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None