Ignite Creation Date:
2024-05-06 @ 7:19 PM
Last Modification Date:
2024-10-26 @ 3:04 PM
Study NCT ID:
NCT05965648
Status:
ACTIVE_NOT_RECRUITING
Last Update Posted:
2023-07-28
First Post:
2023-06-28
Brief Title:
Development of a Family-Based Transition Planning Program for Culturally-Diverse Youth on the Autism Spectrum
Sponsor:
Boston University Charles River Campus
Organization:
Boston University Charles River Campus
Study Overview
Official Title:
Families FORWARD Development of a Family-Based Transition Planning Program for Culturally-Diverse Youth on the Autism Spectrum
Status:
ACTIVE_NOT_RECRUITING
Status Verified Date:
2024-08
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
The goal of this clinical study is to develop a community-based program to support family members of transition-aged youth on the autism spectrum to help them plan for the future The main aims of the study are
1 To develop the Families FORWARD program
2 To conduct proof-of-concept testing of the Families FORWARD program
Participants will complete surveys before and after participating in the program and will participate in exit interviews at the end of the program
1 To develop the Families FORWARD program
2 To conduct proof-of-concept testing of the Families FORWARD program
Participants will complete surveys before and after participating in the program and will participate in exit interviews at the end of the program
Detailed Description:
The Families FORWARD Focusing on Relationships Well-being and Responsibility aheaD program aims to increase family members active planning for the transition to adulthood in the context of autism The program is designed to enable flexible delivery for families of youth who are diverse across autism features co-occurring conditions service needs cultural values and preferences and readiness to engage in planning The program will be delivered collaboratively with community organizations that support individuals on the autism spectrum andor their families
The current project aims to conduct proof-of-concept testing with a culturally-diverse sample of families of transition-aged youth on the autism spectrum Parents primary caregivers will participate in 6-7 individual personalized sessions that incorporate aspects of skill-building communication goal-setting problem-solving systems navigation education about services and motivational interviewing Youth will be invited to participate in 3 of the sessions along with their parent primary caregiver Participants will complete surveys before and after participating in the program and will participate in exit interviews at the end of the program The investigators will assess indicators of acceptability feasibility and improvement on proposed mediators and outcomes
The current project aims to conduct proof-of-concept testing with a culturally-diverse sample of families of transition-aged youth on the autism spectrum Parents primary caregivers will participate in 6-7 individual personalized sessions that incorporate aspects of skill-building communication goal-setting problem-solving systems navigation education about services and motivational interviewing Youth will be invited to participate in 3 of the sessions along with their parent primary caregiver Participants will complete surveys before and after participating in the program and will participate in exit interviews at the end of the program The investigators will assess indicators of acceptability feasibility and improvement on proposed mediators and outcomes
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None