Ignite Creation Date:
2024-05-06 @ 6:45 PM
Last Modification Date:
2024-10-26 @ 2:54 PM
Study NCT ID:
NCT05773651
Status:
RECRUITING
Last Update Posted:
2023-03-24
First Post:
2023-03-06
Brief Title:
Rare Tumours in Children and Adolescents STEP
Sponsor:
University Hospital Tuebingen
Organization:
University Hospital Tuebingen
Study Overview
Official Title:
Rare Tumours in Children and Adolescents STEP 20 - Register for the Documentation of Rare Tumours in Children and Adolescents
Status:
RECRUITING
Status Verified Date:
2024-09
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
STEP 2 0
Brief Summary:
The aim of the STEP registry is to collect and evaluate experience and data on the diagnosis and treatment of rare childhood tumors in order to use the knowledge gained to improve the treatment prospects for our patients The rarity of a disease should not be a disadvantage for the young patients
Detailed Description:
The objective of the STEP registry is to optimise the diagnosis and treatment of patients with rare tumour diseases in childhood and adolescence Therefore a continuous prospective collection of clinical data on rare paediatric tumours is conducted to improve the understanding of these tumours Beyond analysis of clinical data further scientific research on the biological and molecular genetic characteristics of these tumours is performed These data and a close collaboration with international partners especially the European EXPeRT group enable the improvement of treatment recommendations for these tumours along with establishment a global interdisciplinary network of rare tumour specialists
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None