Ignite Creation Date:
2024-05-06 @ 4:05 PM
Last Modification Date:
2024-10-26 @ 2:03 PM
Study NCT ID:
NCT04863859
Status:
RECRUITING
Last Update Posted:
2023-05-25
First Post:
2021-04-22
Brief Title:
Persons With Dementia and Their Extended Family Caregivers
Sponsor:
Karen Roberto
Organization:
Virginia Polytechnic Institute and State University
Study Overview
Official Title:
Persons With Dementia and Their Extended Family Caregivers Service Use Barriers and Needs
Status:
RECRUITING
Status Verified Date:
2024-07
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
CareEx
Brief Summary:
Immediate family members shoulder the majority of care responsibilities for persons living with dementia However due to various societal changes elder care responsibilities have expanded to extended family members including grandchildren siblings niecesnephews siblings and step-kin
The main objective of this study is to understand the caregiving journeys of various extended family members involved in dementia care We aim to learn about caregivers care management strategies their use of home and community-based services and informal support and barriers to service usage We will use the results from the study to help enhance service delivery alleviate care-related stress and improve the quality of life of dementia patients and their caregivers
We will use a mixed-methods design to explore the challenges faced by caregivers as well as their service usage for the person living with dementia Our methodology involves an initial telephone interview approx 70 minutes that includes open-ended questions standard items and structured measures followed by an 8-day semi-structured daily diary interview about daily care responsibilities and experiences with services 15-20 minutes each evening This study will be conducted with 240 extended family members serving as one of the main caregivers for a person living with dementia in a community setting
The main objective of this study is to understand the caregiving journeys of various extended family members involved in dementia care We aim to learn about caregivers care management strategies their use of home and community-based services and informal support and barriers to service usage We will use the results from the study to help enhance service delivery alleviate care-related stress and improve the quality of life of dementia patients and their caregivers
We will use a mixed-methods design to explore the challenges faced by caregivers as well as their service usage for the person living with dementia Our methodology involves an initial telephone interview approx 70 minutes that includes open-ended questions standard items and structured measures followed by an 8-day semi-structured daily diary interview about daily care responsibilities and experiences with services 15-20 minutes each evening This study will be conducted with 240 extended family members serving as one of the main caregivers for a person living with dementia in a community setting
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None
Secondary IDs
| Secondary ID | Type | Domain | Link |
|---|---|---|---|
| R01AG069818 | NIH | None | httpsreporternihgovquickSearchR01AG069818 |