Ignite Creation Date:
2024-05-06 @ 3:44 PM
Last Modification Date:
2024-10-26 @ 1:55 PM
Study NCT ID:
NCT04733976
Status:
COMPLETED
Last Update Posted:
2022-11-07
First Post:
2021-01-22
Brief Title:
Bullying in Youth With Muscular Dystrophy and Congenital Myopathies
Sponsor:
Holland Bloorview Kids Rehabilitation Hospital
Organization:
Holland Bloorview Kids Rehabilitation Hospital
Study Overview
Official Title:
Assessing the Frequency and Experience of Bullying or Peer Victimization in Children With Muscular Dystrophy and Congenital Myopathies
Status:
COMPLETED
Status Verified Date:
2022-11
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
Bullying is an epidemic in Canada and rates may be underreported Youth with a disability were more likely to be bullied that those without disabilities specifically if the disability was visible Research has been conducted on the prevalence and effects of bullying in youth with disabilities such as cerebral palsy obesity and chronic pain however there is a paucity of research involving youth with muscular dystrophy and congenital myopathies The objectives of this study are to 1 measure bullying frequency 2 describe the types of bullying experiences and 3 explore barriers and facilitators to dealing with bullying by youth with muscular dystrophy or congenital myopathies and their parents The objectives will be met by an online survey and qualitative interviews of youth with muscular dystrophy and congenital myopathy and their parents
Detailed Description:
Bullying is an epidemic in Canada At least one in three Canadian youth report having been bullied Bullying is defined as intentional aggressive behaviour with the intention to harm the victim It is characterized by an imbalance of power between the perpetrator and the victim and is often repetitive although it does not need to be Studies have shown that youth with chronic illness or disability were more likely to be bullied that those without disabilities specifically if the disability was visible Research has been conducted on the prevalence and effects of bullying in youth with disabilities such as cerebral palsy obesity and chronic pain however there is a paucity of research involving youth with muscular dystrophy and congenital myopathies The objectives of this study are to 1 measure bullying frequency 2 describe the types of bullying experiences and 3 explore barriers and facilitators to dealing with bullying by youth and their parents The objectives will be met using a cross-sectional multi-centre mixed methods approach A survey will be administered online at a single time-point to youth and their parents Then purposefully selected participants and their parents will complete a qualitative interview
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None