Ignite Creation Date:
2024-05-06 @ 3:42 PM
Last Modification Date:
2024-10-26 @ 1:54 PM
Study NCT ID:
NCT04721717
Status:
RECRUITING
Last Update Posted:
2023-08-30
First Post:
2020-12-03
Brief Title:
AIMs Writing for Healing A Workshop for Individuals Living With Paralysis
Sponsor:
University of Alabama at Birmingham
Organization:
University of Alabama at Birmingham
Study Overview
Official Title:
AIMs Writing for Healing A Workshop for Individuals Living With Paralysis
Status:
RECRUITING
Status Verified Date:
2024-08
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
The UAB Institute for Arts In Medicine AIM is currently implementing an expressive emotional writing pilot project for adults with paralysis caused by neurological conditions such as traumatic head or spinal cord injury
Detailed Description:
Because of the inability to move certain parts of the body persons with paralysis caused by neurological conditions such as spinal cord injury traumatic head injury and stroke experience grief from the loss of physical capacity social or occupational role function and life goals Common complications associated with grief in these individuals include increased anxiety and depression poor physical health and low sense of purpose in life Therefore it is essential to identify community-based self-help support that can serve as a step to facilitate healthy grieving in these individuals Such support should aim at shifting their mindset from focusing on their loss disability to restoring daily function Constructing and reconstructing the story of ones own life has been reported in several autobiographic accounts as a coping strategy to learn acceptance and how to live with various traumatic conditions ie grief resolution
Writing about emotionally traumatic or challenging experiences has been shown to have a surprisingly beneficial effect on reports of symptom reduction and health care use as well as improvements in health status and well-being in people with chronic conditions Expressive emotional writing programs have demonstrated the ability to improve the quality of life of individuals with chronic conditions Although expressive writing could be a promising avenue in reducing grief and improving psychosocial and physical functioning among adults with paralysis currently few programs on expressive emotional writing are available for these individuals Therefore the UAB Institute for Arts in Medicine AIM will implement an innovative expressive emotional writing pilot project for adults with paralysis
To maximize the number of adults with paralysis who can benefit from participating in this expressive emotional writing program the investigators will partner with two additional organizations -the Is-Able Center and the Lakeshore Foundation in Birmingham Alabama The Is-Able Center httpsisableorg is a non-profit community organization which provides services including grief support that encourage educate and empower the quality of life for individuals with disabilities The Lakeshore Foundation httpswwwlakeshoreorg is also a non-profit community organization that serves and advocates for people with physical disabilities
The writing program will take place at both the Is-Able Center and Lakeshore Foundation starting in July 2020 The program will run for 10 consecutive weeks with weekly writing activities The grant funds will be used to reimburse mileage for adults with paralysis for participation in the writing program hire a program coordinator and two coaches to facilitate the writing program and facilitate discussion conducted in each of the two community organizations
Writing about emotionally traumatic or challenging experiences has been shown to have a surprisingly beneficial effect on reports of symptom reduction and health care use as well as improvements in health status and well-being in people with chronic conditions Expressive emotional writing programs have demonstrated the ability to improve the quality of life of individuals with chronic conditions Although expressive writing could be a promising avenue in reducing grief and improving psychosocial and physical functioning among adults with paralysis currently few programs on expressive emotional writing are available for these individuals Therefore the UAB Institute for Arts in Medicine AIM will implement an innovative expressive emotional writing pilot project for adults with paralysis
To maximize the number of adults with paralysis who can benefit from participating in this expressive emotional writing program the investigators will partner with two additional organizations -the Is-Able Center and the Lakeshore Foundation in Birmingham Alabama The Is-Able Center httpsisableorg is a non-profit community organization which provides services including grief support that encourage educate and empower the quality of life for individuals with disabilities The Lakeshore Foundation httpswwwlakeshoreorg is also a non-profit community organization that serves and advocates for people with physical disabilities
The writing program will take place at both the Is-Able Center and Lakeshore Foundation starting in July 2020 The program will run for 10 consecutive weeks with weekly writing activities The grant funds will be used to reimburse mileage for adults with paralysis for participation in the writing program hire a program coordinator and two coaches to facilitate the writing program and facilitate discussion conducted in each of the two community organizations
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None