Ignite Creation Date:
2024-05-06 @ 3:27 PM
Last Modification Date:
2024-10-26 @ 1:50 PM
Study NCT ID:
NCT04638608
Status:
COMPLETED
Last Update Posted:
2023-02-16
First Post:
2020-11-10
Brief Title:
A Complex Intervention Study on a Palliative Rehabilitation Blended Learning Program to Support Relatives and Health Care Providers of People With ALS and Cognitive Impairments in Coping With Challenges
Sponsor:
Danish Rehabilitation Centre for Neuromuscular Diseases
Organization:
Danish Rehabilitation Centre for Neuromuscular Diseases
Study Overview
Official Title:
A Complex Intervention Study on a Palliative Rehabilitation Blended Learning Program to Support Relatives and Health Care Providers of People With ALS and FTD in Coping With Challenges
Status:
COMPLETED
Status Verified Date:
2023-02
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
A complex intervention study on a palliative rehabilitation blended learning program to support relatives and health care providers of people with ALS and cognitive impairments in coping with challenges
Detailed Description:
The projects concerns tree studies
1 Identifying experience-based evidence of relative of deceased people with ALScognitive impairments and health care providers working with these persons and develop an intervention program
2 Developing a palliative rehabilitation blended learning program for relatives of people with ALS and cognitive impairments and for the health care providers
3 Feasibility testing of the two palliative rehabilitation blended learning programs for relatives and health care providers
Though online palliative rehabilitation the intervention aims to support both relatives of people with ALScognitive impairments and health care providers in coping with challenges related to the diseases
The intervention consists of blended learning through online videos and virtual group meetings where peer-support play an essential role The videos consists of a psycho education mindfulness based stress reduction relationship changes intimacy sorrow and grief control management planning the future how to communicate hope creating memories external support offers Besides the videos and group meetings the relatives are given the possibility to make Ecomaps and diary reflections
1 Identifying experience-based evidence of relative of deceased people with ALScognitive impairments and health care providers working with these persons and develop an intervention program
2 Developing a palliative rehabilitation blended learning program for relatives of people with ALS and cognitive impairments and for the health care providers
3 Feasibility testing of the two palliative rehabilitation blended learning programs for relatives and health care providers
Though online palliative rehabilitation the intervention aims to support both relatives of people with ALScognitive impairments and health care providers in coping with challenges related to the diseases
The intervention consists of blended learning through online videos and virtual group meetings where peer-support play an essential role The videos consists of a psycho education mindfulness based stress reduction relationship changes intimacy sorrow and grief control management planning the future how to communicate hope creating memories external support offers Besides the videos and group meetings the relatives are given the possibility to make Ecomaps and diary reflections
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None