Ignite Creation Date:
2024-05-06 @ 3:10 PM
Last Modification Date:
2024-10-26 @ 1:44 PM
Study NCT ID:
NCT04544761
Status:
ACTIVE_NOT_RECRUITING
Last Update Posted:
2023-10-18
First Post:
2020-09-04
Brief Title:
Resilience in Persons Following Spinal Cord Injury
Sponsor:
Shirley Ryan AbilityLab
Organization:
Shirley Ryan AbilityLab
Study Overview
Official Title:
Resilience in People Following Spinal Cord Injury
Status:
ACTIVE_NOT_RECRUITING
Status Verified Date:
2023-10
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
This study aims to quantify resilience in survivors of a spinal cord injury The study will consist of structured interviews and self-reported surveys We will look for common themes between participants at different stages of injury 1-5 years 5-15 years 15 Years
Detailed Description:
The goal of this project is to broaden the understanding of the lived experience of aging with a disability from the perspectives of individuals with physical disabilities resulting from spinal cord injury SCI The specific objectives of this project are to
1 Learn how people with SCI attain and maintain optimal quality of life as they age
2 Understand how people with SCI develop resilience as they grow older
3 Understand how individual quality of life is related to the degree and mechanism of resilience among people with SCI
4 Learn which resources and practices have been most helpful and useful to people with SCI as they age with their disability
5 Assess personal behavioral and environmental factors that contribute to resilience and quality of life among people aging with SCI
6 Refine and confirm a holistic model for the relationships among the concepts of resilience quality of life and person-centered factors resources behaviors
Through in-depth interviews and detailed surveys we will explore how people with SCI attain and maintain optimal quality of life as they age and how their quality of life relates to resiliency as they traverse the path of aging with SCI We will explore with participants the resources and practices that have been most helpful and useful to them as they age with their disability
1 Learn how people with SCI attain and maintain optimal quality of life as they age
2 Understand how people with SCI develop resilience as they grow older
3 Understand how individual quality of life is related to the degree and mechanism of resilience among people with SCI
4 Learn which resources and practices have been most helpful and useful to people with SCI as they age with their disability
5 Assess personal behavioral and environmental factors that contribute to resilience and quality of life among people aging with SCI
6 Refine and confirm a holistic model for the relationships among the concepts of resilience quality of life and person-centered factors resources behaviors
Through in-depth interviews and detailed surveys we will explore how people with SCI attain and maintain optimal quality of life as they age and how their quality of life relates to resiliency as they traverse the path of aging with SCI We will explore with participants the resources and practices that have been most helpful and useful to them as they age with their disability
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None