Ignite Creation Date:
2024-05-06 @ 3:09 PM
Last Modification Date:
2024-10-26 @ 1:44 PM
Study NCT ID:
NCT04541875
Status:
WITHDRAWN
Last Update Posted:
2022-05-12
First Post:
2020-08-26
Brief Title:
Medication Adherence and Non-adherence in Adults With Rare Disease
Sponsor:
Xperiome
Organization:
Xperiome
Study Overview
Official Title:
A Longitudinal Digital Study Using the Medication Adherence Reasons Scale MAR-Scale to Identify the Reasons for Non-adherence to Medications in Rare Disease
Status:
WITHDRAWN
Status Verified Date:
2022-05
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Liquidation of sponsor
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
The purpose of this study is to use the Medication Adherence Reasons Scale MAR-Scale to determine the extent of non-adherence to specific medications indicated to treat cystic fibrosis hemophilia A or B idiopathic pulmonary fibrosis myasthenia gravis and sickle cell disease and to identify the top patient-reported reasons for non-adherence Internal reliability of the MAR-Scale will also be assessed in each condition
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None