Ignite Creation Date:
2024-05-05 @ 4:59 PM
Last Modification Date:
2024-10-26 @ 9:26 AM
Study NCT ID:
NCT00360711
Status:
COMPLETED
Last Update Posted:
2017-07-02
First Post:
2006-08-04
Brief Title:
Genetic Counselors Experiences of Moral Value Conflicts With Clients
Sponsor:
National Human Genome Research Institute NHGRI
Organization:
National Institutes of Health Clinical Center CC
Study Overview
Official Title:
Genetic Counselors Experiences of Moral Value Conflicts With Clients
Status:
COMPLETED
Status Verified Date:
2007-03-31
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
This study will examine the experience of moral value conflicts among genetic counselors Previous research has shown that value conflicts do exist among genetic counselors but little is known about the nature or consequences of these conflicts This is a sub-study of the Manifestations and Consequences of Moral Distress Among Genetic Service Providers An Exploratory Study which includes genetic counselors nurses and medical geneticists
Genetic counselors are recruited for this value-conflict sub-study from among those participating in the Moral Distress study Participants are interviewed in-depth by telephone about their experiences of moral value conflicts with clients The interviews cover the following situations in which the counselor has disagreed with a clients decision or views on a moral level the counselors thought processes during and after a session in which conflicts arise the counselors feelings and emotions associated with sessions involving a moral value conflict the counselors current and previous work settings the counselors view of his or her role and responsibility in a clients decision challenging a clients values or decision and preparation for value conflicts
Genetic counselors are recruited for this value-conflict sub-study from among those participating in the Moral Distress study Participants are interviewed in-depth by telephone about their experiences of moral value conflicts with clients The interviews cover the following situations in which the counselor has disagreed with a clients decision or views on a moral level the counselors thought processes during and after a session in which conflicts arise the counselors feelings and emotions associated with sessions involving a moral value conflict the counselors current and previous work settings the counselors view of his or her role and responsibility in a clients decision challenging a clients values or decision and preparation for value conflicts
Detailed Description:
Genetic counselors may be faced with situations in which they disagree on a moral level with the views or decisions of their clients These moral value conflicts between counselors and their clients may have negative emotional consequences for counselors Little is known about the range of sources of these conflicts the approaches counselors take to address them or the impact they have on the counselors life and career This study seeks to gain insight into the nature sources and consequences of moral value conflicts among genetic counselors through semi-structured in-depth interviews with approximately 30 genetic counselors Interview questions will be nested within interviews for a larger study entitled Moral Distress and Suffering of Genetics Professionals The discussion will be centered on a personal experience of moral value conflict that the counselor has had with a client Interviews will be transcribed and subjected to thematic analysis Such analysis will result in the identification of common themes running through the interviews An understanding of value conflicts may allow for future interventions to minimize the negative effects of these events
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
None
Is a FDA Regulated Device?:
None
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None
Secondary IDs
| Secondary ID | Type | Domain | Link |
|---|---|---|---|
| 06-HG-N179 | None | None | None |