Ignite Creation Date:
2024-05-05 @ 4:57 PM
Last Modification Date:
2024-10-26 @ 9:26 AM
Study NCT ID:
NCT00359710
Status:
COMPLETED
Last Update Posted:
2017-07-02
First Post:
2006-08-01
Brief Title:
Patients Perspectives on Identity Ancestry and Genetics
Sponsor:
National Human Genome Research Institute NHGRI
Organization:
National Institutes of Health Clinical Center CC
Study Overview
Official Title:
Identity Ancestry and Genetics Patients Perspectives
Status:
COMPLETED
Status Verified Date:
2011-02-23
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
This study will collect the opinions understandings and personal health care experiences of multiracial persons of African and European ancestry Understanding multiracial patients beliefs and experiences about their race ethnicity ancestral origin and the genetic components of diseases can provide important data for developing ways to communicate how human genetic variation is related to self-identified race and ethnicity The study will
Investigate multiracial individuals beliefs about biological and genetic differences based on race and ethnicity
Collect stories of identity ancestry and clinical experiences of multiracial individuals with one parent of African ancestry and one parent of European ancestry
Investigate multiracial patients experiences regarding family health history and communication of genetic risk of disease
Persons 21 years of age or older in the Atlanta Georgia or Washington DC metropolitan areas who are from a multiracial background and have used health care services in the last 2 years may be eligible for this study Participants are interviewed one-on-one for about 2 hours to gather information about their background family ancestry self-identity race and ethnicity health care interactions and genetics and health Each participant completes a short questionnaire before and after the interview
Investigate multiracial individuals beliefs about biological and genetic differences based on race and ethnicity
Collect stories of identity ancestry and clinical experiences of multiracial individuals with one parent of African ancestry and one parent of European ancestry
Investigate multiracial patients experiences regarding family health history and communication of genetic risk of disease
Persons 21 years of age or older in the Atlanta Georgia or Washington DC metropolitan areas who are from a multiracial background and have used health care services in the last 2 years may be eligible for this study Participants are interviewed one-on-one for about 2 hours to gather information about their background family ancestry self-identity race and ethnicity health care interactions and genetics and health Each participant completes a short questionnaire before and after the interview
Detailed Description:
The complex relationships between self-identified race ethnicity ancestral origin and the genetic components of diseases demands a better understanding of patients conceptions of these identifiers and how they impact their health The lived experiences of multiracial individuals can provide valuable perspectives on questions of race and ethnicity the collection of ancestral information in assessing health history and communication of racial or ethnic specific disease risk Understanding patients beliefs and experiences will provide important data for developing ways to communicate how human genetic variation is related to self identified race and ethnicity We aim to conduct semi-structured in-depth interviews with adults at least 21 years of age who identify as having a multiracial background with African and European ancestry The study will include participants from the Atlanta Georgia and Washington DC metropolitan areas This preliminary study uses qualitative methods to capture the personal stories of identity ancestry and clinical experiences from a population that has not been adequately researched
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
None
Is a FDA Regulated Device?:
None
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None
Secondary IDs
| Secondary ID | Type | Domain | Link |
|---|---|---|---|
| 06-HG-0148 | None | None | None |