Ignite Creation Date:
2024-05-06 @ 12:22 PM
Last Modification Date:
2024-10-26 @ 12:58 PM
Study NCT ID:
NCT03749980
Status:
RECRUITING
Last Update Posted:
2024-04-26
First Post:
2018-05-30
Brief Title:
MyVHL Patient Natural History Study
Sponsor:
Joshua Mann MPH
Organization:
VHL Alliance
Study Overview
Official Title:
MyVHL Patient Natural History Study
Status:
RECRUITING
Status Verified Date:
2024-04
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
MyVHL
Brief Summary:
MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients MyVHL provides you -and researchers -with more complete information about VHL like how your lifestyle medications and other factors impact the disease and quality of life These insights help you better understand the condition and help researchers know where to focus their efforts
Due to its rarity there is less understanding of VHL and the factors that may have an impact The data individuals provide in MyVHL helps researchers identify and uncover factors that may increase risk inhibit or slow tumor growth or lead to an effective cure
Due to its rarity there is less understanding of VHL and the factors that may have an impact The data individuals provide in MyVHL helps researchers identify and uncover factors that may increase risk inhibit or slow tumor growth or lead to an effective cure
Detailed Description:
None
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
False
Is a FDA Regulated Device?:
False
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None