Ignite Creation Date:
2024-05-06 @ 3:04 AM
Last Modification Date:
2024-10-26 @ 11:27 AM
Study NCT ID:
NCT02191436
Status:
UNKNOWN
Last Update Posted:
2015-10-20
First Post:
2014-07-14
Brief Title:
Adherence to Treatment in Hemophilia
Sponsor:
ANA TORRES-ORTUÑO
Organization:
Universidad de Murcia
Study Overview
Official Title:
Psychosocial Factors and Adherence to Treatment in Patients With Hemophilia A Multicenter Study
Status:
UNKNOWN
Status Verified Date:
2015-09
Last Known Status:
RECRUITING
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
ADHERENCE
Brief Summary:
Psychosocial factors and adherence to treatment in patients with hemophilia A multicenter study Multicenter cross sectional study of patients with hemophilia and their families
Detailed Description:
Research project whose main objective is to assess adherence and major psychosocial issues affecting patients with hemophilia and their families treated at the Hematology and hemotherapy Services Clinical Hospital Universitario Virgen de la Arrixaca of Murcia and the University Hospital Carlos Haya Malaga
The data obtained in this project will identify those psychosocial aspects affecting patients and their families about the disease its evolution and treatment of it They will use different psychosocial questionnaires based on scientific evidence and the reliability of these as well as its specific design for hemophilia patients The main characteristics of the study are
Descriptive study of adherence to treatment of pediatric patients adolescents and adults with hemophilia
Descriptive study of family functioning perceived stress anxiety and quality of life in parents of children with hemophilia under 14 years and adolescents with hemophilia depending on the administered medical treatment clinical and musculoskeletal patient situation
Descriptive study of illness behavior or perception of illness perceived stress anxiety quality of life and coping strategies of young adults with hemophilia depending on the medical treatment administered and skeletal muscle clinical situation of the patient
Validation of psychosocial assessment tools in patients with hemophilia and their families
The data obtained in this project will identify those psychosocial aspects affecting patients and their families about the disease its evolution and treatment of it They will use different psychosocial questionnaires based on scientific evidence and the reliability of these as well as its specific design for hemophilia patients The main characteristics of the study are
Descriptive study of adherence to treatment of pediatric patients adolescents and adults with hemophilia
Descriptive study of family functioning perceived stress anxiety and quality of life in parents of children with hemophilia under 14 years and adolescents with hemophilia depending on the administered medical treatment clinical and musculoskeletal patient situation
Descriptive study of illness behavior or perception of illness perceived stress anxiety quality of life and coping strategies of young adults with hemophilia depending on the medical treatment administered and skeletal muscle clinical situation of the patient
Validation of psychosocial assessment tools in patients with hemophilia and their families
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
None
Is a FDA Regulated Device?:
None
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None
Secondary IDs
| Secondary ID | Type | Domain | Link |
|---|---|---|---|
| ADHE | OTHER | UMU | None |